Special Needs Parents

Celebrating World Down syndrome Day our Journey!

Today around the world many are celebrating World Down syndrome day!!
It’s a chance to celebrate the families around the world that love and are touched by Down Syndrome in their lives!

I want to share today a little bit of our journey with Down syndrome!!

15 years ago I was found out my son was going to be born with Down syndrome! I was 26 weeks along in my pregnancy! A pregnancy that wan’t suppose to happen! I was in the middle of a divorce and when I found out he had Down syndrome I was also told he may not survive the next 24 hours. They asked me if I wanted to abort my son! It left in tears I was heart broken, I was devastated that they would even ask me that.

I knew very little about Trisomy 21 other wise known as Down syndrome!! I didn’t know what our future held for us, and I didn’t know how I was going to do it alone!! I just new that this was a gift from god and our adventures began!!

Today my son is 15 and every day I feel blessed to be his mom!! 

He will make you laugh, he will bring the kid in you out! He has a huge heart and loves everyone!!
Is it easy?  Hell no it is not easy!
My son also has Autism! He is has very limited speech, he has moderate to severe hearing loss, and some other health issues!!  These don’t make is hard!  What makes it hard though are not his abilities or lack of it is the road blocks that society places in his way!!

Road blocks to quality medical without having to go thousands of miles, road blocks to go to school with peers that are typical, road blocks with day cares and after school programs so the parents can work outside the home, road blocks on a system that is not up to par!!

This is why we celebrate World Down syndrome Day!

It raises the awareness! It raises funding for further research! It brings people and communities together to celebrate these angels! Because honestly that is what they are! You will never meet anyone else so inocent as a person with Down syndrome! They don’t know hate! It is not in them to see the ugliness of the world! They only see the good!!

Every day as Christopher’s Mom I do everything I can to give him a life worth living! This is why I do what I do! Many of our families suffer either from health or poverty and there is no reason for it!!

So Why 21 March?

The date for WDSD being the 21st day of the 3rd month, was selected to signify the uniqueness of the triplication (trisomy) of the 21st chromosome which causes Down syndrome.

These people, these children deserve to be respected and treated just like everyone else and unfortunately that is not the situation!! Because they learn and act a little different, maybe it is they don’t talk well or not at all; what ever it is there is still so much seclusion happening!! I see it every day with my son!!

He will walk in a room and light it up with his smile!! His laughter will be so hard it rattles the walls!! Small accomplishments bring great pride!! 

He loves Music and movies! He loves to go camping!! He is a great swimmer and loves to be on the boat!!! He is just like you and me but with an extra special twist! 

 

 

                                     

Every Task, Every Day Is A BIG DEAL!!! 

 

 

 

Loving Life One Day At A TIME !!

For more information on World Down syndrome day click here https://worlddownsyndromeday.org/about-wdsd   Or just follow us and our journey through life on my page http://www.facebook.com/coachdebbieforand

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